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Senior Vice President, Rare Patient Voice

Pam Cusick

Pam is an experienced research professional with more than 30 years of expertise in study design, implementation, and analysis. Her background in public health communications and research coupled with her passion for patient advocacy dovetails nicely with Rare Patient Voice’s mission and vision. Pam hopes to expand Rare Patient Voice’s panels to include every patient who wants to share their opinions and impact their disease category. Pam earned a BA in Psychology from Sweet Briar College, and a MA in Psychology from the New School for Social Research. Pam is Past-President of the Board of Directors and Scientific Advisory Council Lead for the Horses and Humans Research Foundation. As Vice President of Business Development at Rare Patient Voice, Pam focuses on developing client relationships and expanding patient panels.



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